On Rare Disease Day, a Focus on a Painful Skin Disease

(DGIwire) – To shed a spotlight on the more than 6,000 rare diseases, Rare Disease Day is marked worldwide on the last day of February each year—an event designed to raise awareness among the general public and decision-makers about these diseases and their impact on the lives of patients and their families. Starting in 2008 […]

Gene Therapy May Offer Potential Relief for Rare, Painful, Blistering Skin Disease

(DGIwire) — The term “butterfly children” sounds pleasant, but it refers to a harsh reality: children born with epidermolysis bullosa, or EB, an inherited, genetic blistering skin disorder that makes their skin as fragile as a butterfly’s wings. EB affects all races, ethnicities and both genders, and has no cure. According to the Dystrophic Epidermolysis […]

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